Another day, Another Doctor

The last 24 hours have been pretty eventful. Lily's two top teeth are cutting through, which makes for a pretty cranky little girl. She also had some reflux issues last night. She vomited blood a few times. Needless to say, we didn't get to much sleep last night.

This morning she had physical therapy, followed by a G.I. appointment. Therapy went well, as usually. She has a great therapist. Today we worked on her upper body, neck, shoulders, etc. She tends to get extremely stiff and extends  her arms so much they turn in. This is not helping her accomplish some of her goals, i.e. reaching for toys, holding toys and such. We are currently working on getting her an occupational therapist to work on these things more. We also work with her on tummy time and sitting. Visits to the G.I. are always fun. We left with a referral for an x-ray of her belly to make sure her GJ-tube hasn't moved into her belly and for a urine culture. On a good note, she is gaining weigh pretty well. She is at 11 lbs 8 oz. She has gained about 2 lbs this last month.

Tiny Lily in the NICU 

This little person has had more X-rays, ultrasounds, urine cultures, hospital visits, doctor's visits, trips to the lab, and taken more meds in her 9 months 1 week of life then I have in 26 years. Who imagines this  life for there child ? I'm constantly reminded of where Lily should be developmental wise for her age. Some days it doesn't bother me, other days it's heartbreaking. I never imagined while I was pregnant that life would have taken us here.